jimjulierobbins@comcast.net<br/><br/>4a. Re: One year ago today...   <br/>    From: Nicole Hudson<br/><br/>5a. cries a lot after surgery   <br/>    From: sobia<br/>5b. Re: cries a lot after surgery   <br/>    From: Cassandra Weaver<br/>5c. Re: cries a lot after surgery   <br/>    From: shanon woolley<br/>5d. Re: cries a lot after surgery   <br/>    From: susan tobin grivey<br/>5e. Re: cries a lot after surgery   <br/>    From: Jamie Blatnik<br/>5f. Re: cries a lot after surgery   <br/>    From: SOBIA JAVEED<br/><br/>6a. expressive results way better than receptive??   <br/>    From: robinpo_ca<br/>6b. Re: expressive results way better than receptive??   <br/>    From: Cassandra Weaver<br/>6c. Re: expressive results way better than receptive??   <br/>    From: robinpo_ca<br/><br/>7a. Re: deaf family pilot   <br/>    From: surgespancho<br/>7b. Re: deaf family pilot   <br/>    From: Sara Christopher<br/>7c. Re: deaf family pilot   <br/>    From: surgespancho<br/>7d. Re: deaf family pilot   <br/>    From: Ralph Fruguglietti<br/>7e. Re: deaf family pilot   <br/>    From: Melissa Jensen<br/>7f. Re: deaf family pilot   <br/>    From: surgespancho<br/>7g. Re: deaf family pilot   <br/>    From: nkowens2002<br/>7h. Re: deaf family pilot   <br/>    From: nonie8887<br/>7i. Re: deaf family pilot   <br/>    From: Debra Bellon<br/><br/>8a. Re: job switch/insurance change anxiety   <br/>    From: Lisa<br/>8b. Re: job switch/insurance change anxiety   <br/>    From: shanon woolley<br/><br/><br/>Messages<br/>________________________________________________________________________<br/>1a. Re: Rejection of Cochlear implant question.<br/>    Posted by: "Kim Norton" kim_norton1@hotmail.com clumsytulip<br/>    Date: Sun Nov 7, 2010 6:25 am ((PST))<br/><br/><br/>Henry has had his CI since March so 7.5 months. In the past month we have noticed that he *asks* for his CI in the morning and if it falls of. For an almost 3-year-old we are pleased. OUr thoughts are that he is getting great benefit and is making more and more sense of English. Maybe the maps are too loud? Good luck.   <br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>From: faire_jour@yahoo.com<br/>Date: Sat, 6 Nov 2010 23:45:27 -0700<br/>Subject: Re: [cicircle] Rejection of Cochlear implant question.<br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/>   <br/>     <br/>     <br/>      How long has he had it? What is his language like/ Does it seem uncomfortable for him? Is it possible that it hurts?<br/><br/><br/><br/>-Melissa Jensen<br/><br/><br/><br/>Mom to Miss Kat- 7, bilateral progressive loss severe-profound (bilaterally implanted with AB, right 11-21-08, left 8-25-10)<br/><br/><br/><br/>http://misskatsmom.blogspot.com/<br/><br/><br/><br/>--- On Sat, 11/6/10, kelly <catnerd714@yahoo.com> wrote:<br/><br/><br/><br/>From: kelly <catnerd714@yahoo.com><br/><br/>Subject: [cicircle] Rejection of Cochlear implant question.<br/><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/><br/>Date: Saturday, November 6, 2010, 9:27 AM<br/><br/><br/><br/> <br/><br/><br/><br/>Does anyone have any experience with a child refusing to wear their CI? My 5 year old son is refusing his implants-will not put them on at all and I would like to hear your experiences for guidance.<br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/>   <br/>     <br/><br/>   <br/>   <br/><br/><br/><br/><br/><br/><br/>                            <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (4)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>2a. Re: what age was your child implanted?<br/>    Posted by: "Melissa Novak" missy1dolfin1@yahoo.com missy1dolfin1<br/>    Date: Sun Nov 7, 2010 8:14 am ((PST))<br/><br/>Hi Michelle,<br/>My son was born profound left and moderate severe right , he wore aids from 4<br/>months -18 months when he lost all hearing in right ear , they then continued to<br/>do booth testing , and one sedated BER test . this confirmed that he was<br/>elegible for implants , we then made the decision to bilaterally implant him<br/>when he was 21 months old, it's now been 8 months since surgery and all is<br/>wonderful , we would have never done one at a time .... just our decision .<br/>nothing wrong with doing one at a time , i just don't see the point in two<br/>surgeries .<br/><br/>Melissa<br/><br/><br/><br/><br/>________________________________<br/>From: M&M Braendler <mmbraendler@internode.on.net><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sat, November 6, 2010 10:26:44 PM<br/>Subject: [cicircle] what age was your child implanted?<br/><br/> <br/>Hi, I am just wanting to know how old your child was when they first got<br/>implanted, single implant or bilateral? Also what testing they did before<br/>they gave you the go ahead to have them implanted? We we're told our<br/>daughter may be implanted at 6 months by the surgeon. Now the audio said she<br/>wants to just check what Sophie's neck strength is like at 6 months, then<br/>start sound booth testing at 7mnths and a tentative implant date of May. Our<br/>son was implanted with his first at 8 months. She's had two SSEP and both<br/>time shown at profound loss.<br/><br/>Michelle<br/><br/>Ethan 6 Bi-lateral CI's<br/><br/>Jaiden 4 hearing<br/><br/>Josiah 2 Bi-lateral CI's<br/><br/>Sophie 4mnths profound HA's<br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (4)<br/>________________________________________________________________________<br/>2b. Re: what age was your child implanted?<br/>    Posted by: "Julia Wilson" wilson.feit@yahoo.com wilson.feit<br/>    Date: Sun Nov 7, 2010 10:35 am ((PST))<br/><br/>Ben was implanted unilaterally at 8.5 months, activated at 9 months.  Before implantation, he had (I think) 3 ABRs over the course of several months, all with pretty much the same results, showing a stable severe-to-profound loss, and a behavioral booth test at 7 months as part of candidacy evaluation, showing the same loss as the ABRs.<br/> <br/>At that time, our surgeon had implanted as early as 6 months, but we were told that those were exceptional cases (post-meningitis, with danger of ossification) and that he generally preferred to wait until 8-9 months.  This was in 2008; he might be implanting at 6 months more routinely by now.  We were worried that the surgeon might want to delay on Ben, because he was low weight for his height, but that turned out not to be an issue.<br/> <br/>Julia<br/><br/>Parent of Ben (b. 10-19-07), AB CI in right ear (July 2008), aided left, www.orange-b.blogspot.com<br/><br/>--- On Sun, 11/7/10, M&M Braendler <mmbraendler@internode.on.net> wrote:<br/><br/><br/>From: M&M Braendler <mmbraendler@internode.on.net><br/>Subject: [cicircle] what age was your child implanted?<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Sunday, November 7, 2010, 5:26 AM<br/><br/><br/> <br/><br/><br/><br/>Hi, I am just wanting to know how old your child was when they first got<br/>implanted, single implant or bilateral? Also what testing they did before<br/>they gave you the go ahead to have them implanted? We we're told our<br/>daughter may be implanted at 6 months by the surgeon. Now the audio said she<br/>wants to just check what Sophie's neck strength is like at 6 months, then<br/>start sound booth testing at 7mnths and a tentative implant date of May. Our<br/>son was implanted with his first at 8 months. She's had two SSEP and both<br/>time shown at profound loss.<br/><br/>Michelle<br/><br/>Ethan 6 Bi-lateral CI's<br/><br/>Jaiden 4 hearing<br/><br/>Josiah 2 Bi-lateral CI's<br/><br/>Sophie 4mnths profound HA's<br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (4)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>3a. Re: Eye exam and ERG<br/>    Posted by: "jimjulierobbins@comcast.net" jimjulierobbins@comcast.net jimjulierobbins<br/>    Date: Sun Nov 7, 2010 8:49 am ((PST))<br/><br/><br/><br/>Sandra what is Pou 23 testing for.....what kind of syndrome?<br/><br/><br/><br/>Julie Robbins<br/><br/><br/>----- Original Message -----<br/>From: "Shandra Reiswig" <shandrareiswig@clearwire.net><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Saturday, November 6, 2010 9:43:45 PM<br/>Subject: Re: [cicircle] Re: Eye exam and ERG<br/><br/> <br/><br/><br/><br/><br/>Hi Melissa,<br/><br/>Yes! I found out my uncle (dads brother) had 2 different colored eyes. I told this to the Geneticist and I had investigated Waardenburg but he didn't give it a second thought. It wasn't until our Otochip came back highly rate (neg for many other syndromes, neg for Pou23, neg for Connexin, etc. that I demanded this test. They mentioned the highest rate for this syndrome is in Germany, and my husband just happens to be German.<br/><br/>Shandra Reiswig<br/>http://beautifulbrinley.blogspot.com<br/><br/>Sent from my iPhone, so please excuse my concision and inevitable typos :)<br/><br/>On Nov 5, 2010, at 7:51 PM, "Melissa K. Chaikof" < mkchaikof@gmail.com > wrote:<br/><br/>> What you describe sounds like Waardenburg Syndrome. The larger than average space between the eyes, the unibrow, and the skin patch discolorations are all part of W.S. Unfortunately, not all W.S. genes have been discovered yet, and so a genetic test would not be conclusive. Do you have any white forelocks or heterochromia (2 different colored eyes) in your family?<br/>><br/>> Melissa Chaikof<br/>> Cochlear Awareness Volunteer<br/>> Rachel N22 12/89 and BiCI N24C 3/04, Jessica BiCI N22 5/96 left and<br/>> N24C 5/04 right, Adam normal hearing<br/>> < http://www.auditoryverbalparents.com > www.auditoryverbalparents.com<br/>> < http://www.cochlearimplantonline.com > www.cochlearimplantonline.com<br/>><br/>> From: XXXXXXXXXXXXXXXXXXXXXXXX [mailto: XXXXXXXXXXXXXXXXXXXXXXXX ] On Behalf Of Shandra Reiswig<br/>> Sent: Friday, November 05, 2010 6:42 PM<br/>> To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> Subject: Re: [cicircle] Re: Eye exam and ERG<br/>><br/>> When I read your email, I noticed similarities between my daughter and yours- and yet I have no idea what fetal finger pads are. Can anyone define? We were told by the Geneticist Brin has small sinus cavities, unibrow, narrow tongue, some skin patch discolorations, larger than average space between eyes and extra small dented toe nails (among a few other things) upon examination.<br/>><br/>> We are waiting to schedule our ERG.<br/>><br/>> Shandra Reiswig<br/>> http://beautifulbrinley.blogspot.com<br/>><br/>> Sent from my iPhone, so please excuse my concision and inevitable typos :)<br/>><br/>> On Nov 3, 2010, at 6:30 PM, "Sarah L" < smskeie@yahoo.com <mailto:smskeie%40yahoo.com> > wrote:<br/>><br/>> > Kacie,<br/>> ><br/>> > You are the first person that I know of who even knows what fetal finger pads are. Did your geneticist give you a possible diagnosis?<br/>> ><br/>> > Sarah L.<br/>> ><br/>> > --- In XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com> , "kaciek14" <kacie.fyrberg@...> wrote:<br/>> > ><br/>> > > Hi Sarah,<br/>> > > I would also be interested to hear any updates on your daughter. My daughter's case sounds very similiar. She was born profoundly deaf and has had gross motor delays/balance issues. She will be 2 on Nov. 20th and just started walking independently last month...very wobbly still, but finally doing it on her own. Usher Syndrome has been discussed a lot with her, and she has had lots of testing which has turned up negative so far. She is going for her 2nd implant in December and they will do an ERG at that time, so we are anxious for those results as well. She saw a geneticist last year and he mentioned fetal pads. We have not been back to see him, but once we get through the surgery, we will do that early next year. She is doing really well, so we are encouraged by her progress, so sometimes feel like we should stop searching for a cause when we are aware that we may never find one. But some days, it feels like an explanation of her situation would be nice. Anyhow, it is just always interesting to hear someone else in a similar situation. I look forward to any updates. Good luck and take care.<br/>> > ><br/>> > > Kacie F.<br/>> > > Mom to Grace, 23 months, Nucleus 5 12/09 and soon-to-be 12/10<br/>> > > --- In XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com> , "Sarah L" <smskeie@> wrote:<br/>> > > ><br/>> > > > I have questioned Waardenburg as well. She has very blue eyes and I know that can be a symptom, but blue eyes run in both my and my husbands families. Both of our fathers have blue eyes. The geneticist didn't think it was Waardenburg, but at that time we didn't know about her hypopigmented retinas. Aside from being deaf and having balance issues, she really has no other deficits. Another physical trait she has is persistent fetal finger pads. The geneticist pointed this out to us, I never really noticed it before, but she said that it can point to a few different syndromes. We will meet with her again after the results of the ERG are in. I will bring up Waardenburg again. I pretty much have myself convinced it is either Usher, Waardenburg, or a combination of both. I know that with Waardenburg only one parent has to have the gene, and with Usher, we would both have to be carriers. So much to think about.... I will post the ERG results when they come in. Thanks for the info Melissa.<br/>> > > ><br/>> > > > Sarah L.<br/>> > > ><br/>> > > > --- In XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com> , "Melissa K. Chaikof" <mkchaikof@> wrote:<br/>> > > > ><br/>> > > > > My daughter had the same thing. However, we were told it has nothing to do<br/>> > > > > with Usher Syndrome. RP results in dark spots on the retina, not lighter<br/>> > > > > spots. Have you looked into Waardenburg Syndrome? There is a good chance<br/>> > > > > we have both Waardenburg and Usher, and we were told that the hypopigmented<br/>> > > > > retinas can be part of Waardenburg Syndrome. I would be curious to learn<br/>> > > > > your ERG results when you get them back as my daughter is the only other one<br/>> > > > > we know with the hypopigmented retinas. Waardenburg Syndrome can include<br/>> > > > > some of the same vestibular issues that Usher has.<br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > > Melissa Chaikof<br/>> > > > > Cochlear Awareness Volunteer<br/>> > > > > Rachel N22 12/89 and BiCI N24C 3/04, Jessica BiCI N22 5/96 left and<br/>> > > > > N24C 5/04 right, Adam normal hearing<br/>> > > > > < http://www.auditoryverbalparents.com > www.auditoryverbalparents.com<br/>> > > > > < http://www.cochlearimplantonline.com > www.cochlearimplantonline.com<br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > > From: XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com> [mailto: XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com> ] On Behalf<br/>> > > > > Of Sarah L<br/>> > > > > Sent: Friday, October 29, 2010 10:57 AM<br/>> > > > > To: XXXXXXXXXXXXXXXXXXXXXXXX <mailto:cicircle%40yahoogroups.com><br/>> > > > > Subject: [cicircle] Eye exam and ERG<br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > > Hi all,<br/>> > > > ><br/>> > > > > On Tuesday and Wednesday, we took Aliyah back to the University of Minnesota<br/>> > > > > and had an extensive eye exam and an ERG. Of course we will not have the<br/>> > > > > results from the ERG for a few weeks, but they did tell us that the back of<br/>> > > > > her eyes are very light colored, lighter than normal. She is a fair skinned,<br/>> > > > > blonde, blue eyed girl so they thought that this could be why she is so<br/>> > > > > light pigmented in the back of her eye, but of course the ERG will tell all.<br/>> > > > > I am just wondering if any of your kiddies with Ushers have light pigment in<br/>> > > > > the back of the eyes? I am just really anxious for these results. We just<br/>> > > > > want an answer. Our 7 month old is hearing so far and doesn't have any of<br/>> > > > > the vestibular issues Aliyah has, but I would like to know if he has what<br/>> > > > > she has and it just hasn't presented yet. Sorry, I am rambling now...<br/>> > > > > Thanks.<br/>> > > > ><br/>> > > > > Sarah L. Mom to Aliyah almost 2 1/2, bilateral Freedoms; Anthony 7 months,<br/>> > > > > hearing.<br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > ><br/>> > > > > [Non-text portions of this message have been removed]<br/>> > > > ><br/>> > > ><br/>> > ><br/>> ><br/>> ><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/>><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (19)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>4a. Re: One year ago today...<br/>    Posted by: "Nicole Hudson" nicolita98@yahoo.com nicolita98<br/>    Date: Sun Nov 7, 2010 10:18 am ((PST))<br/><br/>Great videos! Made me smile big. We are coming up on one year as well and can't wait to celebrate. <br/>-NicoleMom to Wyatt age 3 1/2 N5 since 12/1/09 and Will age 6 normal hearing<br/>--- On Sat, 11/6/10, freya_88 <freya_88@yahoo.com> wrote:<br/><br/>From: freya_88 <freya_88@yahoo.com><br/>Subject: [cicircle] One year ago today...<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Saturday, November 6, 2010, 11:37 PM<br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/> <br/><br/><br/>   <br/>     <br/>     <br/>      One year ago today, my daughter, Sophie, who was born with a bilateral profound sensorineural hearing loss, heard her first sounds through her CI's.  I still can't think about this day without getting very emotional. <br/><br/><br/><br/>Activation video -<br/><br/>http://www.dropshots.com/falayah#date/2009-11-08/20:56:04<br/><br/><br/><br/>And video from a month ago -<br/><br/>http://www.youtube.com/watch?v=gy7FVFQskjQ<br/><br/><br/><br/>In one year, with a lot of hard work, therapy and lots and lots of talking, she is now 8 months AHEAD receptively and 3 months AHEAD expressively.  She loves her "ears" as we call them.  She asks for them as soon as she wakes up in the morning and soaks everything up like a sponge.  It's a medical science miracle and I'm so thankful that this was available to her. <br/><br/><br/><br/>Just wanted to share.<br/><br/><br/><br/>~freya.<br/><br/><br/><br/>{Mom to Sophie - 25 months, SNHL, bilateral N5's 10/22/09 - Activated 11/6/09 & Ethan - 6 yrs - typical hearing}<br/><br/><br/><br/><br/><br/>   <br/>     <br/><br/>   <br/>   <br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (2)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>5a. cries a lot after surgery<br/>    Posted by: "sobia" sobeehai@yahoo.com sobeehai<br/>    Date: Sun Nov 7, 2010 11:24 am ((PST))<br/><br/>Hello Everyone<br/>Hope you all are doing fine...well its been a week since our sons surgery... I wanted to ask you guys one thing.. the first 3-4 days after the surgery he was fine... not crying a lot but now he is so irritated and like last night he didnt sleep well. he was crying and irritated... im giving him pain medicine but not after every 4 hours...Now its just once or twice a day...<br/>Would really appreciate any kind of feedback..<br/>regards<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>5b. Re: cries a lot after surgery<br/>    Posted by: "Cassandra Weaver" cassandra_weaver1984@yahoo.com cassandra_weaver1984<br/>    Date: Sun Nov 7, 2010 11:32 am ((PST))<br/><br/>Have you tried giving more pain meds?  My son refused the pain meds after the<br/>first day and didn't cry like that, but if he was, I'd be inclined to push meds<br/>and see if that helped.<br/><br/><br/><br/><br/>________________________________<br/>From: sobia <sobeehai@yahoo.com><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sun, November 7, 2010 1:24:37 PM<br/>Subject: [cicircle] cries a lot after surgery<br/><br/> <br/>Hello Everyone<br/>Hope you all are doing fine...well its been a week since our sons surgery... I<br/>wanted to ask you guys one thing.. the first 3-4 days after the surgery he was<br/>fine... not crying a lot but now he is so irritated and like last night he didnt<br/>sleep well. he was crying and irritated... im giving him pain medicine but not<br/>after every 4 hours...Now its just once or twice a day...<br/>Would really appreciate any kind of feedback..<br/>regards<br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>5c. Re: cries a lot after surgery<br/>    Posted by: "shanon woolley" woolley324@yahoo.com woolley324<br/>    Date: Sun Nov 7, 2010 11:48 am ((PST))<br/><br/>I don't remember the pain lasting last long.  Sometimes prescription pain medicine makes my kids feel even worse - no pain, but makes them cranky.  I've found that using regular over the counter things like motrin or tylenol works wonders for my kids.<br/><br/>Shanon Woolley<br/><br/>kinnickandcarver.blogspot.com<br/><br/>--- On Sun, 11/7/10, sobia <sobeehai@yahoo.com> wrote:<br/><br/>From: sobia <sobeehai@yahoo.com><br/>Subject: [cicircle] cries a lot after surgery<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Sunday, November 7, 2010, 1:24 PM<br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/> <br/><br/><br/>   <br/>     <br/>     <br/>      Hello Everyone<br/><br/>Hope you all are doing fine...well its been a week since our sons surgery... I wanted to ask you guys one thing.. the first 3-4 days after the surgery he was fine... not crying a lot but now he is so irritated and like last night he didnt sleep well. he was crying and irritated... im giving him pain medicine but not after every 4 hours...Now its just once or twice a day...<br/><br/>Would really appreciate any kind of feedback..<br/><br/>regards<br/><br/><br/><br/><br/><br/>   <br/>     <br/><br/>   <br/>   <br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>5d. Re: cries a lot after surgery<br/>    Posted by: "susan tobin grivey" drsusantobin@sbcglobal.net drsusantobin@sbcglobal.net<br/>    Date: Sun Nov 7, 2010 1:43 pm ((PST))<br/><br/>Our daughter came down with a post-surgical secondary infection around the 7-8th<br/>day.  She was fine day 2-6 (tylenol only for a few days) and then she got much<br/>worse suddenly.  She became more irritable and then started running a<br/>temperature.  ENT prescribed anti-biotics.  She had tubes at the same time as<br/>the implants and one of the tubes got plugged with blood and became<br/>infected.  If he is running a temp, I would call the ENT right away.<br/><br/>Our pediatrician recommends motrin/ ibuprophen for night because it lasts<br/>longer.  We do that for our daughter for teething and it really helps her last<br/>through the night. <br/><br/><br/>Hope he feels better soon,<br/>susan<br/>mother to sage, bilateral n5s, 8/20/10<br/> <br/> <br/> <br/><br/><br/><br/>________________________________<br/>From: sobia <sobeehai@yahoo.com><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sun, November 7, 2010 11:24:37 AM<br/>Subject: [cicircle] cries a lot after surgery<br/><br/> <br/>Hello Everyone<br/>Hope you all are doing fine...well its been a week since our sons surgery... I<br/>wanted to ask you guys one thing.. the first 3-4 days after the surgery he was<br/>fine... not crying a lot but now he is so irritated and like last night he didnt<br/>sleep well. he was crying and irritated... im giving him pain medicine but not<br/>after every 4 hours...Now its just once or twice a day...<br/>Would really appreciate any kind of feedback..<br/>regards<br/><br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>5e. Re: cries a lot after surgery<br/>    Posted by: "Jamie Blatnik" jlblatnik@yahoo.com jlblatnik<br/>    Date: Sun Nov 7, 2010 5:12 pm ((PST))<br/><br/>Hello,<br/>   Does he seem like he is in pain or is he frustrated that he can not hear. <br/>Did he wear hearing aids before he had the surgery done....maybe he is just<br/>frustrated because he knows he can not hear as well as he could and he just can<br/>not tell you.  I noticed that with my son. Hope this helps:)))<br/><br/><br/><br/><br/><br/>________________________________<br/>From: sobia <sobeehai@yahoo.com><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sun, November 7, 2010 2:24:37 PM<br/>Subject: [cicircle] cries a lot after surgery<br/><br/> <br/>Hello Everyone<br/>Hope you all are doing fine...well its been a week since our sons surgery... I<br/>wanted to ask you guys one thing.. the first 3-4 days after the surgery he was<br/>fine... not crying a lot but now he is so irritated and like last night he didnt<br/>sleep well. he was crying and irritated... im giving him pain medicine but not<br/>after every 4 hours...Now its just once or twice a day...<br/>Would really appreciate any kind of feedback..<br/>regards<br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>5f. Re: cries a lot after surgery<br/>    Posted by: "SOBIA JAVEED" sobeehai@yahoo.com sobeehai<br/>    Date: Sun Nov 7, 2010 8:32 pm ((PST))<br/><br/>Hello,<br/>          It doesn't look like that he is in pai..its mostly frustrated.. And he used hearing aids for 3 months... I think it might be the pain medicine coz i didn't give him today and he seemed fine... i hope he sleeps through the night too... thanks a lot guys...really really appreciate it...<br/>Regards<br/><br/>--- On Sun, 11/7/10, Jamie Blatnik <jlblatnik@yahoo.com> wrote:<br/><br/>From: Jamie Blatnik <jlblatnik@yahoo.com><br/>Subject: Re: [cicircle] cries a lot after surgery<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Sunday, November 7, 2010, 5:12 PM<br/><br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/> <br/><br/><br/>   <br/>     <br/>     <br/>      Hello,<br/><br/>   Does he seem like he is in pain or is he frustrated that he can not hear. <br/><br/>Did he wear hearing aids before he had the surgery done....maybe he is just<br/><br/>frustrated because he knows he can not hear as well as he could and he just can<br/><br/>not tell you.  I noticed that with my son. Hope this helps:)))<br/><br/><br/><br/>________________________________<br/><br/>From: sobia <sobeehai@yahoo.com><br/><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/><br/>Sent: Sun, November 7, 2010 2:24:37 PM<br/><br/>Subject: [cicircle] cries a lot after surgery<br/><br/><br/><br/>Hello Everyone<br/><br/>Hope you all are doing fine...well its been a week since our sons surgery... I<br/><br/>wanted to ask you guys one thing.. the first 3-4 days after the surgery he was<br/><br/>fine... not crying a lot but now he is so irritated and like last night he didnt<br/><br/>sleep well. he was crying and irritated... im giving him pain medicine but not<br/><br/>after every 4 hours...Now its just once or twice a day...<br/><br/>Would really appreciate any kind of feedback..<br/><br/>regards<br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/>   <br/>     <br/><br/>   <br/>   <br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (6)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>6a. expressive results way better than receptive??<br/>    Posted by: "robinpo_ca" robinpo_ca@yahoo.ca robinpo_ca<br/>    Date: Sun Nov 7, 2010 1:30 pm ((PST))<br/><br/>Joshua has had this pattern in results before, and it appears to be coming out yet again.  He is part of a long-term bilateral ci study through Med-el and the slp who has conducted his testing just called me to ask a few more questions.  We ended up discussing his results.  He just turned four in September and is about to celebrate his 3 year hearing birthday in a few days.  Apparently, this time around he tested at 5.4 years for his expressive language (I think he's 85th percentile?)!! I knew that his vocab and use of sentences was good, but that's the highest it's ever been!  On the other hand, his receptive language is coming out at 3.7 years (I remember her saying that he's 34th percentile).  She said that while other slps may disagree, she's not worried at all at this point.  I'm not *that* worried either, since he's still ahead of his hearing age in both areas, but I'm finding it bizarre that he is consistently showing this gap in testing (not just with this particular person, either, it's just never been this pronounced).  I would definitely expect a gap showing that receptive is ahead of expressive, but not the other way around!  Any thoughts?<br/><br/>Robin<br/>Mom to Maddie (7) and Josh (4, hearing with bilateral Opus 2 since Nov/07)<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (3)<br/>________________________________________________________________________<br/>6b. Re: expressive results way better than receptive??<br/>    Posted by: "Cassandra Weaver" cassandra_weaver1984@yahoo.com cassandra_weaver1984<br/>    Date: Sun Nov 7, 2010 5:50 pm ((PST))<br/><br/><br/><br/>Could be with the older sibling at home? <br/><br/><br/>________________________________<br/>From: robinpo_ca <robinpo_ca@yahoo.ca><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sun, November 7, 2010 3:30:25 PM<br/>Subject: [cicircle] expressive results way better than receptive??<br/><br/> <br/>Joshua has had this pattern in results before, and it appears to be coming out<br/>yet again. He is part of a long-term bilateral ci study through Med-el and the<br/>slp who has conducted his testing just called me to ask a few more questions. We<br/>ended up discussing his results. He just turned four in September and is about<br/>to celebrate his 3 year hearing birthday in a few days. Apparently, this time<br/>around he tested at 5.4 years for his expressive language (I think he's 85th<br/>percentile?)!! I knew that his vocab and use of sentences was good, but that's<br/>the highest it's ever been! On the other hand, his receptive language is coming<br/>out at 3.7 years (I remember her saying that he's 34th percentile). She said<br/>that while other slps may disagree, she's not worried at all at this point. I'm<br/>not *that* worried either, since he's still ahead of his hearing age in both<br/>areas, but I'm finding it bizarre that he is consistently showing this gap in<br/>testing (not just with this particular person, either, it's just never been this<br/>pronounced). I would definitely expect a gap showing that receptive is ahead of<br/>expressive, but not the other way around! Any thoughts?<br/><br/>Robin<br/>Mom to Maddie (7) and Josh (4, hearing with bilateral Opus 2 since Nov/07)<br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (3)<br/>________________________________________________________________________<br/>6c. Re: expressive results way better than receptive??<br/>    Posted by: "robinpo_ca" robinpo_ca@yahoo.ca robinpo_ca<br/>    Date: Sun Nov 7, 2010 6:45 pm ((PST))<br/><br/>But still, you would think that his receptive would still be stronger?<br/><br/>I'm confused, but trying not to worry!<br/><br/>Robin<br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Cassandra Weaver <cassandra_weaver1984@...> wrote:<br/>><br/>><br/>><br/>> Could be with the older sibling at home? <br/>><br/>><br/>> ________________________________<br/>> From: robinpo_ca <robinpo_ca@...><br/>> To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> Sent: Sun, November 7, 2010 3:30:25 PM<br/>> Subject: [cicircle] expressive results way better than receptive??<br/>><br/>>  <br/>> Joshua has had this pattern in results before, and it appears to be coming out<br/>> yet again. He is part of a long-term bilateral ci study through Med-el and the<br/>> slp who has conducted his testing just called me to ask a few more questions. We<br/>> ended up discussing his results. He just turned four in September and is about<br/>> to celebrate his 3 year hearing birthday in a few days. Apparently, this time<br/>> around he tested at 5.4 years for his expressive language (I think he's 85th<br/>> percentile?)!! I knew that his vocab and use of sentences was good, but that's<br/>> the highest it's ever been! On the other hand, his receptive language is coming<br/>> out at 3.7 years (I remember her saying that he's 34th percentile). She said<br/>> that while other slps may disagree, she's not worried at all at this point. I'm<br/>> not *that* worried either, since he's still ahead of his hearing age in both<br/>> areas, but I'm finding it bizarre that he is consistently showing this gap in<br/>> testing (not just with this particular person, either, it's just never been this<br/>> pronounced). I would definitely expect a gap showing that receptive is ahead of<br/>> expressive, but not the other way around! Any thoughts?<br/>><br/>> Robin<br/>> Mom to Maddie (7) and Josh (4, hearing with bilateral Opus 2 since Nov/07)<br/>><br/>><br/>><br/>><br/>><br/>>       <br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (3)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>7a. Re: deaf family pilot<br/>    Posted by: "surgespancho" surgespancho@yahoo.com surgespancho<br/>    Date: Sun Nov 7, 2010 1:59 pm ((PST))<br/><br/>While I'm sure that is true in some instances, it certainly wasn't in our case. We were told my daughter SHOULD NOT get an implant. Because she was adopted at age 4, and was considered "too old" to be a successful CI user....I had to fight very hard to get my daughter implanted. After she received her first implant, the audiologist told me that if she had known I was going to choose the "oral route" for my daughter, she never would have approved the CI process for her. She flat out refused to consider a 2nd implant for her. I had to switch centers to get the second implant. The first implant center was in So. California at UCLA.<br/><br/>My daughter is 6 now and has two implants. We have chosen for her to be oral and she's doing great. It is a lot of hard work and will be a lifelong road, but it will be a happy one filled with sound :)<br/><br/>I feel like there is a lot of judgment from the Deaf community toward those who choose CI's. I also think there is a lot of false information about CI's in the Deaf community and society in general. While this reality show would be interesting & I may watch, it would only show one side of the spectrum. In the pilot itself you see when the father was talking about how bad "oralism" was for him. This show clearly promotes Deaf culture and ASL as being the best choice for a deaf child.<br/><br/>Andrea<br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Debra Bellon <debra.bellon@...> wrote:<br/>><br/>> I have to say I feel the discussions and atmosphere on this listserv <br/>> are great! I live in France and joined a French forum for children <br/>> with CIs, and it's impossible to have a discussion about anything <br/>> unless it's the mainstream techniques (here in France, cued speech and <br/>> signed French). A few auditory-verbal families joined and were <br/>> basically pushed off the list by people telling them they were <br/>> mistreating their children and not accepting their deafness. I haven't <br/>> been on here long but I feel comfortable discussing ASL, auditory-<br/>> verbal, etc. and I love the diversity of the group.<br/>><br/>> Having said that, I really like the "My Deaf Family" pilot as it is. I <br/>> think they were chosen because they are active in the Deaf, signing <br/>> community - the parents both work at the California School for the <br/>> Deaf   and the mother was active in the Deaf President Now movement in <br/>> the 1980s. I like how the family has both deaf and hearing kids. I <br/>> understand what you're saying about not disseminating information, <br/>> Melissa, but I do think that in 2010 it's difficult to find parents in <br/>> wealthy countries who were not offered a CI, whereas I do think many <br/>> are told not to use ASL. I know of one hearing couple in France that <br/>> felt they were being bullied into the CI, and another family with an <br/>> older child that advocates for sign without the need for a CI - I saw <br/>> an interview with them where they said that they share their choice <br/>> with many families but so far no one has followed in their <br/>> footsteps. . I guess maybe you're thinking more of deaf parents rather <br/>> than hearing parents? If that's the case, then yes, I think there are <br/>> a lot of misconceptions. But I also know deaf families with deaf kids <br/>> who are not unsupportive of CIs (I was afraid to tell them my daughter <br/>> was going to get one, but they've been very supportive about it). They <br/>> just don't want it for their kids, and they think, perhaps rightly, <br/>> that it wouldn't really work for kids in their environment, which is <br/>> 100% signing. They moved to my town so their kids could go to a bi-bi, <br/>> voices off, school, so I don't see them wanting to change that <br/>> environment any time soon.<br/>><br/>> Anyway, my perception, as the parent of a child born in 2009, is that <br/>> giving a child a cochlear implant is really the path of least <br/>> resistance. When my daughter was diagnosed as profoundly deaf, we were <br/>> immediately told that it made her a cochlear implant candidate. <br/>> Everyone has been careful to tell us that we don't have to do it, but <br/>> I've never felt that anyone actually thought we wouldn't want to. I <br/>> think that the lack of information is more in modalities...that seems <br/>> to be more random and depend on where people live. Here in France, for <br/>> instance, we were told that my daughter would always need to lipread <br/>> and some people are big advocates of cued speech. Just yesterday we <br/>> brought up auditory-verbal therapy with a local early intervention <br/>> program director and she told us "oh, we tried that and it doesn't <br/>> work." I'm 100% sure she didn't really know what I was talking about. <br/>> But I've also been told by other professionals that if my daughter <br/>> learned to sign it would hurt her ability to learn to speak, that it <br/>> wasn't possible for her to be bilingual in 2 spoken languages, etc. We <br/>> feel most of the professionals we talk to are speaking from opinion <br/>> rather than research-based evidence. And I think a lot of people are <br/>> getting that about the CI in general - but it's not usually "don't <br/>> give your child a CI," it's usually "it might not work, so why not <br/>> learn sign language too?" I'm not sure that a program including a deaf <br/>> child with a CI being raised in an ASL environment would really give <br/>> an accurate picture of the CI.<br/>><br/>> On another note, I just watched "Voices from El-Sayed," which is about <br/>> a child from an Israeli Arab community with a very large proportion of <br/>> deaf people who gets a cochlear implant. It's very interesting if you <br/>> get a chance to see it!<br/>><br/>> Debra<br/>><br/>><br/>><br/>> On Nov 7, 2010, at 2:12 AM, Melissa K. Chaikof wrote:<br/>><br/>> > There are over 2000 members of the cicircle. With that large a number,<br/>> > there is no labeling this group as one thing or another. We are a <br/>> > diverse<br/>> > group with parents who have espoused pure Auditory-Verbal as I have to<br/>> > parents who have embraced the deaf culture. I've been on this listserv<br/>> > almost since its inception well over a decade ago, and methodology <br/>> > battles<br/>> > have come and gone many times. Fortunately, they've become more of an<br/>> > exchange of ideas over the past few years rather than "battles." <br/>> > I've been<br/>> > involved with deafness and CIs for over 23 years, and I have spent <br/>> > many<br/>> > years getting accurate information out to other parents about what is<br/>> > possible because we were so misled by the deaf culture when my <br/>> > daughter's<br/>> > deafness was first diagnosed in 1987. If you only want to hear from <br/>> > those<br/>> > who share your viewpoint, then this may not be the place. I am all <br/>> > in favor<br/>> > of parents' right to choose, but I am equally in favor of enabling <br/>> > them to<br/>> > make an educated decision, and this proposed reality show doesn't <br/>> > help with<br/>> > that.<br/>> ><br/>> > Melissa Chaikof<br/>> > Cochlear Awareness Volunteer<br/>> > Rachel N22 12/89 and BiCI N24C 3/04, Jessica BiCI N22 5/96 left and<br/>> > N24C 5/04 right, Adam normal hearing<br/>> > www.auditoryverbalparents.com<br/>> > www.cochlearimplantonline.com<br/>> ><br/>> > -----Original Message-----<br/>> > From: XXXXXXXXXXXXXXXXXXXXXXXX [mailto:XXXXXXXXXXXXXXXXXXXXXXXX] On <br/>> > Behalf<br/>> > Of Kim Norton<br/>> > Sent: Saturday, November 06, 2010 7:53 PM<br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> > Subject: RE: [cicircle] deaf family pilot<br/>> ><br/>> > Sorry, but that argument is as frightening as the Deaf extremists <br/>> > argument<br/>> > is.<br/>> > When a child is born today the first people whom a family interacts <br/>> > with is<br/>> > those in the medical community. The CI is often touted as the ONLY <br/>> > solution<br/>> > for a deaf child. How many Deaf people who use ASL only are meandering<br/>> > around hospitals imploring parents to sign?<br/>> > As for the general public, again I feel the case is the opposite <br/>> > from your<br/>> > statement. For the first two years of Henry's life we signed ASL. We <br/>> > knew<br/>> > this was not the only way deaf people communicated. The vast <br/>> > majority of<br/>> > people we encountered all said "there is so much that can be done <br/>> > today," or<br/>> > "what about that thing I saw on (insert show here)?" Rarely, if at <br/>> > all, did<br/>> > we hear anything to the degree that you are suggesting. Implying <br/>> > that a<br/>> > reality television show could be a swaying factor for a family with <br/>> > a deaf<br/>> > child is absurd.<br/>> > I enjoy this listserv but extremism is not my cup of tea. We shied <br/>> > away from<br/>> > the ASL-only, Deaf-is-best mentality due to extremism. As helpful as <br/>> > this<br/>> > group has been I had hoped that this would be one that was without<br/>> > fearmongering.<br/>> > KimJack, normal hearingHenry, 3/10 N5<br/>> ><br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> > From: mkchaikof@...<br/>> > Date: Sat, 6 Nov 2010 10:25:04 -0400<br/>> > Subject: RE: [cicircle] deaf family pilot<br/>> ><br/>> > Unfortunately, the general public's notion of deafness is still sign<br/>> ><br/>> > language and, if oral, through lipreading and deaf sounding speech. <br/>> > Those<br/>> ><br/>> > of us on this listserv are well aware of any media stories on CIs, <br/>> > but the<br/>> ><br/>> > general public does not seek and share them as we do. Thus, the <br/>> > level of<br/>> ><br/>> > awareness in the general public of the possibilities for children <br/>> > born deaf<br/>> ><br/>> > today is still one of too much ignorance. There are still too many <br/>> > parents<br/>> ><br/>> > out there who went uninformed about the possibilities for their <br/>> > children<br/>> ><br/>> > because they did not have access to accurate information. Shows like <br/>> > this<br/>> ><br/>> > will only serve to further this. If one child who could have gotten an<br/>> ><br/>> > early CI and learned to hear and speak misses that opportunity because<br/>> ><br/>> > his/her parents saw a show like this and assumed that was the way it <br/>> > had to<br/>> ><br/>> > be, then that is one child too many.<br/>> ><br/>> > Melissa Chaikof<br/>> ><br/>> > Cochlear Awareness Volunteer<br/>> ><br/>> > Rachel N22 12/89 and BiCI N24C 3/04, Jessica BiCI N22 5/96 left and<br/>> ><br/>> > N24C 5/04 right, Adam normal hearing<br/>> ><br/>> > www.auditoryverbalparents.com<br/>> ><br/>> > www.cochlearimplantonline.com<br/>> ><br/>> > -----Original Message-----<br/>> ><br/>> > From: XXXXXXXXXXXXXXXXXXXXXXXX [mailto:XXXXXXXXXXXXXXXXXXXXXXXX] On <br/>> > Behalf<br/>> ><br/>> > Of Kim Norton<br/>> ><br/>> > Sent: Saturday, November 06, 2010 9:34 AM<br/>> ><br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> ><br/>> > Subject: RE: [cicircle] deaf family pilot<br/>> ><br/>> > I love this! What a great story and perspective. There is a petition <br/>> > on<br/>> ><br/>> > Facebook to get the pilot picked up by a network.<br/>> ><br/>> > However, I don't see the setback for "...raising public awareness of <br/>> > what is<br/>> ><br/>> > possible for children born deaf today." (CI's are covered on the <br/>> > news and<br/>> ><br/>> > the talk shows, not many Deaf families on Oprah) The Deaf kids and the<br/>> ><br/>> > parents in the show can do anything our kiddos can do with the sole<br/>> ><br/>> > exception of speaking orally. Not everyone has the same emphasis. <br/>> > Value this<br/>> ><br/>> > pilot for what it is: a unique family with a unique story. You want <br/>> > to show<br/>> ><br/>> > the perspective of a family with deaf kids who have CI's pitch it! <br/>> > I'm sure<br/>> ><br/>> > it would be a hit and could show the opposite side of what deaf kids <br/>> > today<br/>> ><br/>> > can do.<br/>> ><br/>> > KimJack, normal hearingHenry 3/10 N5<br/>> ><br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> ><br/>> > From: jimjulierobbins@...<br/>> ><br/>> > Date: Fri, 5 Nov 2010 19:21:27 +0000<br/>> ><br/>> > Subject: Re: [cicircle] deaf family pilot<br/>> ><br/>> > Agreed!<br/>> ><br/>> > ----- Original Message -----<br/>> ><br/>> > From: "Melissa K. Chaikof" <mkchaikof@...><br/>> ><br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> ><br/>> > Sent: Friday, November 5, 2010 2:21:07 PM<br/>> ><br/>> > Subject: RE: [cicircle] deaf family pilot<br/>> ><br/>> > I finally got around to watching this. I haven't read all the <br/>> > comments, and<br/>> ><br/>> > so I'm not sure if anyone has expressed what I felt. I think that <br/>> > had this<br/>> ><br/>> > been made into a series, it would have been a setback for raising <br/>> > public<br/>> ><br/>> > awareness of what is possible for children born deaf today. Imagine if<br/>> ><br/>> > these parents had sought CIs for their two children born deaf as a <br/>> > couple of<br/>> ><br/>> > parents on this listerv have. It would have been a more valuable <br/>> > show. For<br/>> ><br/>> > those who feel it is important to show the deaf culture, that would <br/>> > still<br/>> ><br/>> > have been in there, but it also would have shown how different their <br/>> > kids'<br/>> ><br/>> > lives could have been in that CIs would have enabled them to be part <br/>> > of both<br/>> ><br/>> > worlds.<br/>> ><br/>> > Melissa Chaikof<br/>> ><br/>> > Cochlear Awareness Volunteer<br/>> ><br/>> > Rachel N22 12/89 and BiCI N24C 3/04, Jessica BiCI N22 5/96 left and<br/>> ><br/>> > N24C 5/04 right, Adam normal hearing<br/>> ><br/>> > < http://www.auditoryverbalparents.com > www.auditoryverbalparents.com<br/>> ><br/>> > < http://www.cochlearimplantonline.com > www.cochlearimplantonline.com<br/>> ><br/>> > From: XXXXXXXXXXXXXXXXXXXXXXXX [mailto: XXXXXXXXXXXXXXXXXXXXXXXX ] <br/>> > On Behalf<br/>> ><br/>> > Of dozodozo<br/>> ><br/>> > Sent: Tuesday, November 02, 2010 11:48 AM<br/>> ><br/>> > To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> ><br/>> > Subject: [cicircle] deaf family pilot<br/>> ><br/>> > Hi!<br/>> ><br/>> > I just read somewhere that there is a pilot for a reality show about <br/>> > a Deaf<br/>> ><br/>> > family with hearing and deaf children and whose parents are also <br/>> > Deaf and<br/>> ><br/>> > all of the sign (non of them uses CIs or hearing aids). I just <br/>> > wanted to<br/>> ><br/>> > share the link:<br/>> ><br/>> > http://www.youtube.com/watch?v=P-Gc85nQK8w<br/>> ><br/>> > Carmen<br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>> ><br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>> > ------------------------------------<br/>> ><br/>> > Under no circumstances are the comments on this list to be used for<br/>> ><br/>> > research, publication, etc., without the express consent of the <br/>> > person who<br/>> ><br/>> > posted. This list is not to be used for commercial purposes. Yahoo! <br/>> > Groups<br/>> ><br/>> > Links<br/>> ><br/>> ><br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>> > ------------------------------------<br/>> ><br/>> > Under no circumstances are the comments on this list to be used for<br/>> > research, publication, etc., without the express consent of the <br/>> > person who<br/>> > posted. This list is not to be used for commercial purposes. Yahoo! <br/>> > Groups<br/>> > Links<br/>> ><br/>> ><br/>> ><br/>><br/>><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7b. Re: deaf family pilot<br/>    Posted by: "Sara Christopher" homefiresburning@gmail.com snobordnwifey<br/>    Date: Sun Nov 7, 2010 2:55 pm ((PST))<br/><br/>I don't think it promotes that ASL and Deaf culture is the best for every<br/>deaf child.  I think it promotes that it works for this family.  I'm also<br/>willing to bet it would tackle a lot of issues such as not being able to<br/>communicate with the public, as well.  It would be a much different story if<br/>the show was of a hearing family embarking on a journey to learn ASL and not<br/>give their deaf kid a CI (not that I honestly think that is wrong).  One of<br/>my main motivators in choosing a CI for my daughter was that I wanted her to<br/>be able to communicate with me in my native language.  That is where I am<br/>most comfortable and I can communicate best.  I think it's only fair to<br/>offer the most open communication to her.<br/><br/>If I were Deaf, I would want her to communicate in my native language, which<br/>would possibly be ASL.  If I were Deaf, I would guess that if I got my deaf<br/>child a CI, the success wouldn't be as obvious because, being deaf, one<br/>can't really do the therapy needed at home, at least not to the same degree.<br/><br/><br/>It seems quite clear to me that because this family is Deaf, it is what<br/>works best for them. I don't see it claiming that ASL is the only right<br/>option for all deaf children.  And to be honest, if I went through what some<br/>of those Deaf adults went through as children, I'd have a hard time<br/>understanding the hearing culture.  I don't blame them one bit.  It doesn't<br/>make their attitude correct....it doesn't make their lies okay, but I can<br/>feel their pain.  It's hard for them to understand that CI's can make it so<br/>much easier and they don't want to see other children endure the same<br/>torture they had to.<br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7c. Re: deaf family pilot<br/>    Posted by: "surgespancho" surgespancho@yahoo.com surgespancho<br/>    Date: Sun Nov 7, 2010 3:14 pm ((PST))<br/><br/>I feel the same way about understanding why some deaf adults feel they way they do about "oralism". For many of them, they were put into oral programs without sufficient hearing to become successfully oral. I completely understand their feelings.....however, those opinions and stories are often the ones that people hear the most. For example, that is the story that will be told on this tv show (and in fact it was on the preview). However, that story is irrelevant today....because today we have CI's. Those stories create the opinion that oral programs don't work.<br/><br/>Andrea<br/><br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@...> wrote:<br/>><br/>> I don't think it promotes that ASL and Deaf culture is the best for every<br/>> deaf child.  I think it promotes that it works for this family.  I'm also<br/>> willing to bet it would tackle a lot of issues such as not being able to<br/>> communicate with the public, as well.  It would be a much different story if<br/>> the show was of a hearing family embarking on a journey to learn ASL and not<br/>> give their deaf kid a CI (not that I honestly think that is wrong).  One of<br/>> my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> be able to communicate with me in my native language.  That is where I am<br/>> most comfortable and I can communicate best.  I think it's only fair to<br/>> offer the most open communication to her.<br/>><br/>> If I were Deaf, I would want her to communicate in my native language, which<br/>> would possibly be ASL.  If I were Deaf, I would guess that if I got my deaf<br/>> child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> can't really do the therapy needed at home, at least not to the same degree.<br/>><br/>><br/>> It seems quite clear to me that because this family is Deaf, it is what<br/>> works best for them. I don't see it claiming that ASL is the only right<br/>> option for all deaf children.  And to be honest, if I went through what some<br/>> of those Deaf adults went through as children, I'd have a hard time<br/>> understanding the hearing culture.  I don't blame them one bit.  It doesn't<br/>> make their attitude correct....it doesn't make their lies okay, but I can<br/>> feel their pain.  It's hard for them to understand that CI's can make it so<br/>> much easier and they don't want to see other children endure the same<br/>> torture they had to.<br/>><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7d. Re: deaf family pilot<br/>    Posted by: "Ralph Fruguglietti" lily.dragon@verizon.net sfruguglietti2000<br/>    Date: Sun Nov 7, 2010 3:38 pm ((PST))<br/><br/>While you might be right about this....   I do not think you can take away a<br/>person's history and their right to tell their own story, if they choose to.  If<br/>this family goes on TV and shares those stories, it is their truth and we cannot<br/>deny them that right, just because it reflects poorly on what oral programs<br/>today can do.  In reality, that is probably true of education and how things<br/>have changed going back in history, particularly in education.   I have a sister<br/>with dyslexia, who was not diagnosed until adulthood... so throughout her<br/>elementary years, she was called dumb and stupid by her teachers, and made to<br/>repeat each and every grade level, through fourth grade.  I am not that old,<br/>older sure;but that happened in elementary schools when I was a child.  So if<br/>she were to tell her story today, would that make people keep their kids out of<br/>school????  Or would we look to see if things have improved before enrolling our<br/>kids, or your kids?  And send them.   I don't feel we can keep things off TV,<br/>simply because they reflect poorly on the past practices.  Isn't it better to<br/>hear these stories to know how to improve and make life easier?  <br/><br/>    Again, we do not know what will come up on the show....   I would bet CI<br/>discussions come up.  I heard the young teenage son say, sometimes he wishes his<br/>parents could hear.   He may bring up CIs.   We don't know... but it this<br/>particular family's story.<br/>    My daughter is deaf, she has a CI and her first language is ASL.  My life<br/>would be so much easier if she processed language better and could make better<br/>use of her CI.  But it is what it is...  She hears better than I do.  It is not<br/>about hearing, it about understanding language.  She is delayed in ASL as<br/>well.   Just because she doesn't speak and auditorily take in language as well<br/>as many other CI kids, doesn't mean I put down CIs.   I still speak positively<br/>about them, especially to new parents. But my reality is that simply having an<br/>CI, having auditory therapy doesn't make it automatic for kids to develop<br/>auditory and spoken language skills.  That's my reality and if I were on a show,<br/>that is what I would have to speak to.  When you implant an infant, you do not<br/>know what learning disabililties or processing problems a child may grow into<br/>that will hinder their progress?  But even knowing that, I'd still implant if I<br/>adopted another deaf child.     Who is to say that this deaf family won't have<br/>positive things to say about CIs???   Who is to say that the hearing son won't?<br/>    Lastly, I saw only one clip of this show and I learned an important lesson,<br/>as Lily's mom.  The mother of the show said, she use to tell people out in<br/>public, (I guess, like salesclerks, etc.) "I'm deaf" but then people would<br/>respond, "Oh, I'm sorry." and show pity. She didn't want that.  So she changed<br/>what she said to "I sign", and finds she gets more respect.  For me, as the<br/>mother of a deaf child, with limited spoken English who usually sign, that was<br/>an important tip for me.<br/>    Lily now at 8 is beginning to advocate for herself.. She will tell<br/>salesclerks, etc. who attempt to talk to her, "I'm Lily. I'm deaf." (in spoken<br/>English).   I think she needs to also add, "I sign." So even from that clip, it<br/>improved our life.<br/><br/><br/><br/><br/>________________________________<br/>From: surgespancho <surgespancho@yahoo.com><br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Sent: Sun, November 7, 2010 6:13:51 PM<br/>Subject: [cicircle] Re: deaf family pilot<br/><br/> <br/>I feel the same way about understanding why some deaf adults feel they way they<br/>do about "oralism". For many of them, they were put into oral programs without<br/>sufficient hearing to become successfully oral. I completely understand their<br/>feelings.....however, those opinions and stories are often the ones that people<br/>hear the most. For example, that is the story that will be told on this tv show<br/>(and in fact it was on the preview). However, that story is irrelevant<br/>today....because today we have CI's. Those stories create the opinion that oral<br/>programs don't work.<br/><br/>Andrea<br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@...> wrote:<br/>><br/>> I don't think it promotes that ASL and Deaf culture is the best for every<br/>> deaf child. I think it promotes that it works for this family. I'm also<br/>> willing to bet it would tackle a lot of issues such as not being able to<br/>> communicate with the public, as well. It would be a much different story if<br/>> the show was of a hearing family embarking on a journey to learn ASL and not<br/>> give their deaf kid a CI (not that I honestly think that is wrong). One of<br/>> my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> be able to communicate with me in my native language. That is where I am<br/>> most comfortable and I can communicate best. I think it's only fair to<br/>> offer the most open communication to her.<br/>><br/>> If I were Deaf, I would want her to communicate in my native language, which<br/>> would possibly be ASL. If I were Deaf, I would guess that if I got my deaf<br/>> child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> can't really do the therapy needed at home, at least not to the same degree.<br/>><br/>><br/>> It seems quite clear to me that because this family is Deaf, it is what<br/>> works best for them. I don't see it claiming that ASL is the only right<br/>> option for all deaf children. And to be honest, if I went through what some<br/>> of those Deaf adults went through as children, I'd have a hard time<br/>> understanding the hearing culture. I don't blame them one bit. It doesn't<br/>> make their attitude correct....it doesn't make their lies okay, but I can<br/>> feel their pain. It's hard for them to understand that CI's can make it so<br/>> much easier and they don't want to see other children endure the same<br/>> torture they had to.<br/>><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7e. Re: deaf family pilot<br/>    Posted by: "Melissa Jensen" faire_jour@yahoo.com faire_jour<br/>    Date: Sun Nov 7, 2010 4:11 pm ((PST))<br/><br/>It still happens. It still happens every day. It is a lot less often, but there certainly are still kids who are "oral failures". My daughter is currently in a public oral program, in the 2nd grade. She has only been oral for about 2 years, and she also knows ASL. Unfortunatly, she is no longer the child with the least amount of spoken language. There are kids in her class who have been getting intervention for spoken language development for 7 years and still can not speak in more than two words sentences. It is much more rare today, but it is still going on. And while I am glad that Peyton and my own daughter are doing well as late implanted kids, they are actually the rarity. When a kiddo misses out on those early years, it is very rare for them to catch up.<br/><br/>-Melissa Jensen<br/><br/>Mom to Miss Kat- 7, bilateral progressive loss severe-profound (bilaterally implanted with AB, right 11-21-08, left 8-25-10)<br/><br/>http://misskatsmom.blogspot.com/<br/><br/>--- On Sun, 11/7/10, surgespancho <surgespancho@yahoo.com> wrote:<br/><br/><br/>From: surgespancho <surgespancho@yahoo.com><br/>Subject: [cicircle] Re: deaf family pilot<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Sunday, November 7, 2010, 4:13 PM<br/><br/><br/> <br/><br/><br/><br/>I feel the same way about understanding why some deaf adults feel they way they do about "oralism". For many of them, they were put into oral programs without sufficient hearing to become successfully oral. I completely understand their feelings.....however, those opinions and stories are often the ones that people hear the most. For example, that is the story that will be told on this tv show (and in fact it was on the preview). However, that story is irrelevant today....because today we have CI's. Those stories create the opinion that oral programs don't work.<br/><br/>Andrea<br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@...> wrote:<br/>><br/>> I don't think it promotes that ASL and Deaf culture is the best for every<br/>> deaf child. I think it promotes that it works for this family. I'm also<br/>> willing to bet it would tackle a lot of issues such as not being able to<br/>> communicate with the public, as well. It would be a much different story if<br/>> the show was of a hearing family embarking on a journey to learn ASL and not<br/>> give their deaf kid a CI (not that I honestly think that is wrong). One of<br/>> my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> be able to communicate with me in my native language. That is where I am<br/>> most comfortable and I can communicate best. I think it's only fair to<br/>> offer the most open communication to her.<br/>><br/>> If I were Deaf, I would want her to communicate in my native language, which<br/>> would possibly be ASL. If I were Deaf, I would guess that if I got my deaf<br/>> child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> can't really do the therapy needed at home, at least not to the same degree.<br/>><br/>><br/>> It seems quite clear to me that because this family is Deaf, it is what<br/>> works best for them. I don't see it claiming that ASL is the only right<br/>> option for all deaf children. And to be honest, if I went through what some<br/>> of those Deaf adults went through as children, I'd have a hard time<br/>> understanding the hearing culture. I don't blame them one bit. It doesn't<br/>> make their attitude correct....it doesn't make their lies okay, but I can<br/>> feel their pain. It's hard for them to understand that CI's can make it so<br/>> much easier and they don't want to see other children endure the same<br/>> torture they had to.<br/>><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7f. Re: deaf family pilot<br/>    Posted by: "surgespancho" surgespancho@yahoo.com surgespancho<br/>    Date: Sun Nov 7, 2010 4:55 pm ((PST))<br/><br/>I would presume that oral programs decades ago differ greatly with oral programs today. While there still may be "oral failures" today...the kids today who are in oral programs CAN hear! That is a huge difference than oral programs 30 years ago when speech was taught using lipreading, and visual & tactile methods. I know that kids do still fall through the cracks, many don't have parents who are as committed as they should be. However, today, most oral programs use listening as the method of learning speech. Every child today has the potential to hear at a level that allows them to develop good speech.<br/><br/>Also, I'm not trying to argue with anyone, or say that this tv show should not be aired. If you read my past messages, never did I say that these parents didn't have the right to chose the communication methods for their children that they did, or that this show shouldn't be aired.....I'm just pointing out that this family has certain opinions and they differ from mine. I was merely stating that this show would show one point of view, and wouldn't give a complete picture of deafness.<br/><br/>Andrea<br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Melissa Jensen <faire_jour@...> wrote:<br/>><br/>> It still happens. It still happens every day. It is a lot less often, but there certainly are still kids who are "oral failures". My daughter is currently in a public oral program, in the 2nd grade. She has only been oral for about 2 years, and she also knows ASL. Unfortunatly, she is no longer the child with the least amount of spoken language. There are kids in her class who have been getting intervention for spoken language development for 7 years and still can not speak in more than two words sentences. It is much more rare today, but it is still going on. And while I am glad that Peyton and my own daughter are doing well as late implanted kids, they are actually the rarity. When a kiddo misses out on those early years, it is very rare for them to catch up.<br/>><br/>> -Melissa Jensen<br/>><br/>> Mom to Miss Kat- 7, bilateral progressive loss severe-profound (bilaterally implanted with AB, right 11-21-08, left 8-25-10)<br/>><br/>> http://misskatsmom.blogspot.com/<br/>><br/>> --- On Sun, 11/7/10, surgespancho <surgespancho@...> wrote:<br/>><br/>><br/>> From: surgespancho <surgespancho@...><br/>> Subject: [cicircle] Re: deaf family pilot<br/>> To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>> Date: Sunday, November 7, 2010, 4:13 PM<br/>><br/>><br/>>  <br/>><br/>><br/>><br/>> I feel the same way about understanding why some deaf adults feel they way they do about "oralism". For many of them, they were put into oral programs without sufficient hearing to become successfully oral. I completely understand their feelings.....however, those opinions and stories are often the ones that people hear the most. For example, that is the story that will be told on this tv show (and in fact it was on the preview). However, that story is irrelevant today....because today we have CI's. Those stories create the opinion that oral programs don't work.<br/>><br/>> Andrea<br/>><br/>> --- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@> wrote:<br/>> ><br/>> > I don't think it promotes that ASL and Deaf culture is the best for every<br/>> > deaf child. I think it promotes that it works for this family. I'm also<br/>> > willing to bet it would tackle a lot of issues such as not being able to<br/>> > communicate with the public, as well. It would be a much different story if<br/>> > the show was of a hearing family embarking on a journey to learn ASL and not<br/>> > give their deaf kid a CI (not that I honestly think that is wrong). One of<br/>> > my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> > be able to communicate with me in my native language. That is where I am<br/>> > most comfortable and I can communicate best. I think it's only fair to<br/>> > offer the most open communication to her.<br/>> ><br/>> > If I were Deaf, I would want her to communicate in my native language, which<br/>> > would possibly be ASL. If I were Deaf, I would guess that if I got my deaf<br/>> > child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> > can't really do the therapy needed at home, at least not to the same degree.<br/>> ><br/>> ><br/>> > It seems quite clear to me that because this family is Deaf, it is what<br/>> > works best for them. I don't see it claiming that ASL is the only right<br/>> > option for all deaf children. And to be honest, if I went through what some<br/>> > of those Deaf adults went through as children, I'd have a hard time<br/>> > understanding the hearing culture. I don't blame them one bit. It doesn't<br/>> > make their attitude correct....it doesn't make their lies okay, but I can<br/>> > feel their pain. It's hard for them to understand that CI's can make it so<br/>> > much easier and they don't want to see other children endure the same<br/>> > torture they had to.<br/>> ><br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>><br/>><br/>><br/>><br/>><br/>><br/>><br/>><br/>><br/>>       <br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7g. Re: deaf family pilot<br/>    Posted by: "nkowens2002" nkowens2002@yahoo.com nkowens2002<br/>    Date: Sun Nov 7, 2010 8:25 pm ((PST))<br/><br/><br/><br/>Sara, I disagree with you that implanted children with Deaf parents who use ASL would not succeed as well as those with hearing parents. My 5 yrs old child is a successful CI user as her spoken language is age appropriate and her both parents are Deaf and use ASL. She has learned all the spoken language at school and at her regular visits with therapists and we didn't have any therapy at home. She also is fluent in ASL which doesn't impact on her spoken language development as it is a separate language. I also have other hearing children who are also age appropriate in spoken language. My older hearing child is even a few years advanced in spoken language although ASL is our primary language at home and we never taught him to speak.<br/><br/>I know a friend whose 4 yrs old son is already a year advanced in spoken language with CIs and his both parents are Deaf and use ASL. He learned all the spoken language at a regular preschool as well as from therapists.<br/><br/>However, if hearing children or deaf children with CI at early ages stayed home with a Deaf parent in an ASL environment most of time instead of attending a spoken language preschool, they may be likely to have some delay in spoken language because of lack of spoken language exposure. Most hearing children who stayed home with Deaf parents would catch up in spoken language naturally and eventually when they start attending school full time in Kindergarten. Some of them also receive speech therapy but I was told that it was really not necessary. It may not make sense to implant a deaf child at an early age if she or he would stay home most of time with a Deaf parent in an ASL environment which is the case in this deaf family pilot.<br/><br/>This TV show would be very educational for the public and it could include both successful and unsuccessful CI users in a few episodes to combat myths about CI.<br/><br/>R.<br/><br/><br/><br/><br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@...> wrote:<br/>><br/>> I don't think it promotes that ASL and Deaf culture is the best for every<br/>> deaf child.  I think it promotes that it works for this family.  I'm also<br/>> willing to bet it would tackle a lot of issues such as not being able to<br/>> communicate with the public, as well.  It would be a much different story if<br/>> the show was of a hearing family embarking on a journey to learn ASL and not<br/>> give their deaf kid a CI (not that I honestly think that is wrong).  One of<br/>> my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> be able to communicate with me in my native language.  That is where I am<br/>> most comfortable and I can communicate best.  I think it's only fair to<br/>> offer the most open communication to her.<br/>><br/>> If I were Deaf, I would want her to communicate in my native language, which<br/>> would possibly be ASL.  If I were Deaf, I would guess that if I got my deaf<br/>> child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> can't really do the therapy needed at home, at least not to the same degree.<br/>><br/>><br/>> It seems quite clear to me that because this family is Deaf, it is what<br/>> works best for them. I don't see it claiming that ASL is the only right<br/>> option for all deaf children.  And to be honest, if I went through what some<br/>> of those Deaf adults went through as children, I'd have a hard time<br/>> understanding the hearing culture.  I don't blame them one bit.  It doesn't<br/>> make their attitude correct....it doesn't make their lies okay, but I can<br/>> feel their pain.  It's hard for them to understand that CI's can make it so<br/>> much easier and they don't want to see other children endure the same<br/>> torture they had to.<br/>><br/>><br/>> [Non-text portions of this message have been removed]<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7h. Re: deaf family pilot<br/>    Posted by: "nonie8887" donannonie@verizon.net nonie8887<br/>    Date: Sun Nov 7, 2010 10:53 pm ((PST))<br/><br/>I have enjoyed the discussions on this so far. It's been interesting to hear everyone's insight and opinions. I did like the pilot of the show and I could tell I would learn a lot from watching it, but I did find myself wishing they had given the deaf children a chance to hear with CI's. I know not all CI users get language but they do hear. My son a late implanty has been so much happier since he received his CI. It has changed him for the better in so many ways. His ASL has really improved since the CI. His imagination exploded. Just being able to hear did something in his brain. It turned on the world for him. I cant help but want that happiness for every child who is in a silent world. Getting a CI should not even be about getting spoken language or oral vs ASL. It's about hearing. It's about being part of the world in a way that was being missed. Just my opinion of course. A little side note. I want to say thank you to all for the respect that everyone shows for each other on this list. Even when we don't always agree with each other everyone is so respectful. So again thanks friends.<br/>Nonie(mom to Joey 6yrs old bilateral N5's)     <br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, "nkowens2002" <nkowens2002@...> wrote:<br/>><br/>><br/>><br/>> Sara, I disagree with you that implanted children with Deaf parents who use ASL would not succeed as well as those with hearing parents. My 5 yrs old child is a successful CI user as her spoken language is age appropriate and her both parents are Deaf and use ASL. She has learned all the spoken language at school and at her regular visits with therapists and we didn't have any therapy at home. She also is fluent in ASL which doesn't impact on her spoken language development as it is a separate language. I also have other hearing children who are also age appropriate in spoken language. My older hearing child is even a few years advanced in spoken language although ASL is our primary language at home and we never taught him to speak.<br/>><br/>> I know a friend whose 4 yrs old son is already a year advanced in spoken language with CIs and his both parents are Deaf and use ASL. He learned all the spoken language at a regular preschool as well as from therapists.<br/>><br/>> However, if hearing children or deaf children with CI at early ages stayed home with a Deaf parent in an ASL environment most of time instead of attending a spoken language preschool, they may be likely to have some delay in spoken language because of lack of spoken language exposure. Most hearing children who stayed home with Deaf parents would catch up in spoken language naturally and eventually when they start attending school full time in Kindergarten. Some of them also receive speech therapy but I was told that it was really not necessary. It may not make sense to implant a deaf child at an early age if she or he would stay home most of time with a Deaf parent in an ASL environment which is the case in this deaf family pilot.<br/>><br/>> This TV show would be very educational for the public and it could include both successful and unsuccessful CI users in a few episodes to combat myths about CI.<br/>><br/>> R.<br/>><br/>><br/>><br/>><br/>><br/>> --- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <homefiresburning@> wrote:<br/>> ><br/>> > I don't think it promotes that ASL and Deaf culture is the best for every<br/>> > deaf child.  I think it promotes that it works for this family.  I'm also<br/>> > willing to bet it would tackle a lot of issues such as not being able to<br/>> > communicate with the public, as well.  It would be a much different story if<br/>> > the show was of a hearing family embarking on a journey to learn ASL and not<br/>> > give their deaf kid a CI (not that I honestly think that is wrong).  One of<br/>> > my main motivators in choosing a CI for my daughter was that I wanted her to<br/>> > be able to communicate with me in my native language.  That is where I am<br/>> > most comfortable and I can communicate best.  I think it's only fair to<br/>> > offer the most open communication to her.<br/>> ><br/>> > If I were Deaf, I would want her to communicate in my native language, which<br/>> > would possibly be ASL.  If I were Deaf, I would guess that if I got my deaf<br/>> > child a CI, the success wouldn't be as obvious because, being deaf, one<br/>> > can't really do the therapy needed at home, at least not to the same degree.<br/>> ><br/>> ><br/>> > It seems quite clear to me that because this family is Deaf, it is what<br/>> > works best for them. I don't see it claiming that ASL is the only right<br/>> > option for all deaf children.  And to be honest, if I went through what some<br/>> > of those Deaf adults went through as children, I'd have a hard time<br/>> > understanding the hearing culture.  I don't blame them one bit.  It doesn't<br/>> > make their attitude correct....it doesn't make their lies okay, but I can<br/>> > feel their pain.  It's hard for them to understand that CI's can make it so<br/>> > much easier and they don't want to see other children endure the same<br/>> > torture they had to.<br/>> ><br/>> ><br/>> > [Non-text portions of this message have been removed]<br/>> ><br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>7i. Re: deaf family pilot<br/>    Posted by: "Debra Bellon" debra.bellon@gmail.com qiubuo<br/>    Date: Sun Nov 7, 2010 11:45 pm ((PST))<br/><br/>One interesting thing for me in this discussion is to see how many <br/>late-implanted kids are out there. It seems like maybe that's where we <br/>need more awareness, especially in the medical community if they are <br/>refusing implants at age 4!<br/><br/>Anyway I'm a filmmaker so if anyone really does have a pilot they want <br/>to make to show the CI story, I'd be happy to help;)<br/><br/>Debra<br/>mom to No�, age 3, hearing, and Lucia, age 13 months, impatiently <br/>waiting to be implanted in February!<br/><br/>On Nov 8, 2010, at 7:53 AM, nonie8887 wrote:<br/><br/>> I have enjoyed the discussions on this so far. It's been interesting <br/>> to hear everyone's insight and opinions. I did like the pilot of the <br/>> show and I could tell I would learn a lot from watching it, but I <br/>> did find myself wishing they had given the deaf children a chance to <br/>> hear with CI's. I know not all CI users get language but they do <br/>> hear. My son a late implanty has been so much happier since he <br/>> received his CI. It has changed him for the better in so many ways. <br/>> His ASL has really improved since the CI. His imagination exploded. <br/>> Just being able to hear did something in his brain. It turned on the <br/>> world for him. I cant help but want that happiness for every child <br/>> who is in a silent world. Getting a CI should not even be about <br/>> getting spoken language or oral vs ASL. It's about hearing. It's <br/>> about being part of the world in a way that was being missed. Just <br/>> my opinion of course. A little side note. I want to say thank you to <br/>> all for the respect that everyone shows for each other on this list. <br/>> Even when we don't always agree with each other everyone is so <br/>> respectful. So again thanks friends.<br/>> Nonie(mom to Joey 6yrs old bilateral N5's)<br/>><br/>> --- In XXXXXXXXXXXXXXXXXXXXXXXX, "nkowens2002" <nkowens2002@...> <br/>> wrote:<br/>> ><br/>> ><br/>> ><br/>> > Sara, I disagree with you that implanted children with Deaf <br/>> parents who use ASL would not succeed as well as those with hearing <br/>> parents. My 5 yrs old child is a successful CI user as her spoken <br/>> language is age appropriate and her both parents are Deaf and use <br/>> ASL. She has learned all the spoken language at school and at her <br/>> regular visits with therapists and we didn't have any therapy at <br/>> home. She also is fluent in ASL which doesn't impact on her spoken <br/>> language development as it is a separate language. I also have other <br/>> hearing children who are also age appropriate in spoken language. My <br/>> older hearing child is even a few years advanced in spoken language <br/>> although ASL is our primary language at home and we never taught him <br/>> to speak.<br/>> ><br/>> > I know a friend whose 4 yrs old son is already a year advanced in <br/>> spoken language with CIs and his both parents are Deaf and use ASL. <br/>> He learned all the spoken language at a regular preschool as well as <br/>> from therapists.<br/>> ><br/>> > However, if hearing children or deaf children with CI at early <br/>> ages stayed home with a Deaf parent in an ASL environment most of <br/>> time instead of attending a spoken language preschool, they may be <br/>> likely to have some delay in spoken language because of lack of <br/>> spoken language exposure. Most hearing children who stayed home with <br/>> Deaf parents would catch up in spoken language naturally and <br/>> eventually when they start attending school full time in <br/>> Kindergarten. Some of them also receive speech therapy but I was <br/>> told that it was really not necessary. It may not make sense to <br/>> implant a deaf child at an early age if she or he would stay home <br/>> most of time with a Deaf parent in an ASL environment which is the <br/>> case in this deaf family pilot.<br/>> ><br/>> > This TV show would be very educational for the public and it could <br/>> include both successful and unsuccessful CI users in a few episodes <br/>> to combat myths about CI.<br/>> ><br/>> > R.<br/>> ><br/>> ><br/>> ><br/>> ><br/>> ><br/>> > --- In XXXXXXXXXXXXXXXXXXXXXXXX, Sara Christopher <br/>> <homefiresburning@> wrote:<br/>> > ><br/>> > > I don't think it promotes that ASL and Deaf culture is the best <br/>> for every<br/>> > > deaf child. I think it promotes that it works for this family. <br/>> I'm also<br/>> > > willing to bet it would tackle a lot of issues such as not being <br/>> able to<br/>> > > communicate with the public, as well. It would be a much <br/>> different story if<br/>> > > the show was of a hearing family embarking on a journey to learn <br/>> ASL and not<br/>> > > give their deaf kid a CI (not that I honestly think that is <br/>> wrong). One of<br/>> > > my main motivators in choosing a CI for my daughter was that I <br/>> wanted her to<br/>> > > be able to communicate with me in my native language. That is <br/>> where I am<br/>> > > most comfortable and I can communicate best. I think it's only <br/>> fair to<br/>> > > offer the most open communication to her.<br/>> > ><br/>> > > If I were Deaf, I would want her to communicate in my native <br/>> language, which<br/>> > > would possibly be ASL. If I were Deaf, I would guess that if I <br/>> got my deaf<br/>> > > child a CI, the success wouldn't be as obvious because, being <br/>> deaf, one<br/>> > > can't really do the therapy needed at home, at least not to the <br/>> same degree.<br/>> > ><br/>> > ><br/>> > > It seems quite clear to me that because this family is Deaf, it <br/>> is what<br/>> > > works best for them. I don't see it claiming that ASL is the <br/>> only right<br/>> > > option for all deaf children. And to be honest, if I went <br/>> through what some<br/>> > > of those Deaf adults went through as children, I'd have a hard <br/>> time<br/>> > > understanding the hearing culture. I don't blame them one bit. <br/>> It doesn't<br/>> > > make their attitude correct....it doesn't make their lies okay, <br/>> but I can<br/>> > > feel their pain. It's hard for them to understand that CI's can <br/>> make it so<br/>> > > much easier and they don't want to see other children endure the <br/>> same<br/>> > > torture they had to.<br/>> > ><br/>> > ><br/>> > > [Non-text portions of this message have been removed]<br/>> > ><br/>> ><br/>><br/>><br/>><br/><br/><br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (24)<br/>________________________________________________________________________<br/>________________________________________________________________________<br/>8a. Re: job switch/insurance change anxiety<br/>    Posted by: "Lisa" ljkach13@yahoo.com ljkach13<br/>    Date: Sun Nov 7, 2010 4:38 pm ((PST))<br/><br/>We were worried about the same thing but because it was a job change it was covered.  That was before the new law.  We did just get a letter from our insurance company that they will now cover pre-exisiting conditions now. <br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, "bekemper" <bekemper@...> wrote:<br/>><br/>> Hi everyone,<br/>><br/>> I'm contemplating a career change in the near future.  Our son is 10-months old and on my insurance.  He will have his second implant surgery next month.  We are absolutely sitting tight until we get through the second surgery, but I have many questions about new insurance coverage.<br/>><br/>> -Is there anything I should be mindful of before I make a job change?  Currently, our coverage is fantastic so this is a very heavy decision for us.<br/>> -Are there pre-existing condition issues we should know about?  My son's been on my insurance since he was born.<br/>> -What am I totally overlooking?<br/>><br/>> I've stuck in my position as long as I can but my husband and I both realize it's time for me to move on.  However, if there's anything remotely wacky that's going to happen with coverage, I'll stay.<br/>><br/>> Any thoughts/experiences/ etc you can provide are much appreciated.<br/>><br/>> Best,<br/>> Brooke<br/>> momma to Coley, 10 months<br/>><br/><br/><br/><br/><br/><br/><br/><br/>Messages in this topic (4)<br/>________________________________________________________________________<br/>8b. Re: job switch/insurance change anxiety<br/>    Posted by: "shanon woolley" woolley324@yahoo.com woolley324<br/>    Date: Sun Nov 7, 2010 4:48 pm ((PST))<br/><br/>One thing that would be good to know is if the company you go to has a "Group" insurance plan, and if so, does it have a "Pre-existing" clause.  The company that I work for has a "Group" plan and as long as you enroll right away when you become eligible, and have had no "lapse" in coverage, there is "No" pre-exisitng clause.  However, if you do not enroll right away when you become "eligible", or you have a lapse in coverage, then there IS a pre-existing clause.  So, you wouldn't want to wait until "open enrollement" to enroll for benefits.  For example:  If open enrollent is December, 2010, and you started work August, 2010, then you would want to be enrolled right away in August or September (whichever month you are first eligible for benefits), you would not want to wait until December, 2010 to enroll.  Waiting may trigger a pre-existing clause.<br/><br/>Shanon Woolley<br/><br/>kinnickandcarver.blogspot.com<br/><br/>--- On Sun, 11/7/10, Lisa <ljkach13@yahoo.com> wrote:<br/><br/>From: Lisa <ljkach13@yahoo.com><br/>Subject: [cicircle] Re: job switch/insurance change anxiety<br/>To: XXXXXXXXXXXXXXXXXXXXXXXX<br/>Date: Sunday, November 7, 2010, 6:38 PM<br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/> <br/><br/><br/>   <br/>     <br/>     <br/>      We were worried about the same thing but because it was a job change it was covered.  That was before the new law.  We did just get a letter from our insurance company that they will now cover pre-exisiting conditions now. <br/><br/><br/><br/>--- In XXXXXXXXXXXXXXXXXXXXXXXX, "bekemper" <bekemper@...> wrote:<br/><br/>><br/><br/>> Hi everyone,<br/><br/>><br/><br/>> I'm contemplating a career change in the near future.  Our son is 10-months old and on my insurance.  He will have his second implant surgery next month.  We are absolutely sitting tight until we get through the second surgery, but I have many questions about new insurance coverage.<br/><br/>><br/><br/>> -Is there anything I should be mindful of before I make a job change?  Currently, our coverage is fantastic so this is a very heavy decision for us.<br/><br/>> -Are there pre-existing condition issues we should know about?  My son's been on my insurance since he was born.<br/><br/>> -What am I totally overlooking?<br/><br/>><br/><br/>> I've stuck in my position as long as I can but my husband and I both realize it's time for me to move on.  However, if there's anything remotely wacky that's going to happen with coverage, I'll stay.<br/><br/>><br/><br/>> Any thoughts/experiences/ etc you can provide are much appreciated.<br/><br/>><br/><br/>> Best,<br/><br/>> Brooke<br/><br/>> momma to Coley, 10 months<br/><br/>><br/><br/><br/><br/><br/><br/>   <br/>     <br/><br/>   <br/>   <br/><br/><br/><br/><br/><br/><br/> <br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/><br/>     <br/><br/>[Non-text portions of this message have been removed]<br/><br/><br/><br/><br/><br/><br/>Messages in this topic (4)<br/><br/><br/><br/>Under no circumstances are the comments on this list to be used for research, publication, etc., without the express consent of the person who posted. This list is not to be used for commercial purposes. <br/><br/>------------------------------------------------------------------------<br/>Yahoo! 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